Rare Disease Day is the globally-coordinated movement working towards equity in social opportunity, healthcare and access to diagnosis and therapies for those living with a rare disease.
This article focuses on listening to new mothers and family to create the right space for the new born with a focus on changes needing to be made to current western type policies.
This Health Policy paper supports SDG 3 and 10 by discussing the situation of Indigenous peoples of Canada in the context of "opt out" organ donation in Novia Scotia, the first area in North America to pass such legislation. The paper explores the potential impacts and issues of such legislation on Indigenous peoples, and makes a series of recommendations which would help to respect the rights and interests of these communities.
This article estimates the coverage of Tackling Indigenous Smoking (TIS) teams in Australia and highlights that expanding the programme to a higher proportion of the Aboriginal and Torres Strait Islander population is an important step towards ensuring equitable access to tobacco control.
This Personal View supports SDG 3 and 10 by discussing the ethical issues surrounding the use of psychedelic pharmacotherapies in Western medicine; as some of these agents are used in traditional medicines by Indigenous people. The authors make a series of recommendations on how these issues can be addressed.
According to this review, life expectancy is reduced for Aboriginal and Torres Strait Islanders in comparison to other residents of Australia. This paper calls for indigenous researchers to be involved in implementing relevant health design with local communities in order to bridge the gap.
The article speaks to action points to improving the diagnosis of breast cancer in black women within the UK to achieve greater equity.
Elsevier,
The Thinking Healthcare System: Artificial Intelligence and Human Equity, 2023, Pages 99-129
This chapter advances the UN SDG Goal 3: Good Health and Goal 10: Reduced Inequalities by introducing the AI transformation of public health (PubHealth) uniting healthcare systems with the central terms, concepts, and history of PubHealth from ancient quarantines to modern vaccines including milestone developments as successful responses to chronic and infectious diseases, sanitation, workplace safety, poverty, and wars.
Elsevier,
Clinical Decision Support and Beyond (Third Edition): Progress and Opportunities in Knowledge-Enhanced Health and Healthcare, 2023, Pages 715-725
This chapter advances the UN SDG Goal 3: Good Health and Goal 10: Reduced Inequalities by discussing the components of a technical infrastructure to support PHM, including data sources (registries, electronic health records), data analytics tools, patient outreach and engagement tools, and patient tracking dashboards along with real-world examples of PHM programs focused on chronic disease management, genetic testing for hereditary cancers, colorectal cancer screening, COVID-19 testing and vaccination, and tobacco cessation.
Evaluating the bias and fairness of ML models has drawn much attention in the machine learning and statistics community. Researchers have proposed methods to assess and mitigate the bias for various applications that could adversely affect underrepresented groups, like recidivism prediction, credit risk prediction, and income prediction.
